PPIRes for the Public, Patients and Carers

What is PPIRes?

The PPIRes project commenced in 2004, is hosted by South Norfolk Clinical Commissioning Group and covers Norfolk and Suffolk.  It offers a unique opportunity to involve lay people in all aspects of the research process – from decisions on what research should take place to the interpretation and dissemination of research findings. We support a group of 60 volunteers in Norfolk and 10 volunteers in Suffolk.  These PPIRes volunteers are patients, carers and members of the public that are prepared to give some of their time to work together with health professionals and researchers by giving a lay perspective on their research.

The panel is offered training in the basics of research to give them an understanding of the process that researchers follow and the requirements that they work towards. The aim of this training is to give the volunteers the confidence to work in partnership with the research teams, giving a common sense viewpoint at each step of the research. It is not designed to make them experts in research.

PPIRes organises relevant training and ensures that travel expenses incurred by our members, as a result of their involvement at the development stage of research, are paid promptly.

How does it work?

Once you volunteer to become a PPIRes panel member we will arrange for you to join us for a relaxed and informal induction session to introduce you to research and panel membership.

PPIRes panel members are usually consulted on research proposals (ideas) before they are put forward to one of the various funding bodies in a bid to achieve the finance to make the research happen. PPIRes members can also be offered the opportunity to be involved after funding has been achieved, to advise on the study as it moves through to completion.

Member involvement could include reviewing the following aspects of the study, either by post, email or by attending meetings:-

  1. Reading and amending materials intended for the public, including lay summaries, information sheets and consent forms
  2. Advising on the acceptability of the study design and the extent of questionnaires
  3. Debating ethical and governance issues
  4. Promoting lay interpretation and dissemination.

Why do researchers need PPIRes?

  • It can give them a different perspective on the research idea and help them to understand the perspective of the research participant
  • It can help get research funded since most funding bodies now require demonstrable public involvement at all stages of the research proposal, from design through to implementation and dissemination.

It brings an alternative viewpoint. The ideas that service users, carers or member of the public would suggest could be key in the study design.

What training could I receive?

Training is offered in a wide range of areas around research and previous training sessions have included:

  • PPIRes induction
  • Basics of Research
  • Research methodology and approach
  • Ethics in Research
  • Steering group involvement

How can I find out more?

To find out more about the PPIRes panel please contact snccg.ppiresoffice@nhs.net.
 
If you would like to join PPIRes and help researchers to design their research ideas to work towards positive health and patient outcomes, please complete the PPIRes Panel Member Profile which you can find below or telephone the PPIRes office on 01603 257009 and request a hardcopy. We will also send you a freepost envelope to return your response.
 
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Clara Yates,
4 Jul 2016, 06:15