Public, patient and carer voice in research

Researchers want to learn from the knowledge patients and carers have gained from living with a condition, or through caring for someone with a condition. Their lived experiences of being on the receiving end of health and social care can contribute to how future research is undertaken. This can, in the longer-term, shape and improve how care is provided.

Interested members of the public can also bring a valuable, common sense perspective.

To find out about taking part in research as a participant you can read about Your Role in NHS Research and go to Be Part of Research to find out about research taking place in your area. Alternatively you can ask your healthcare professionals about research projects

Public and Patient Involvement in Research (PPIRes)

The Research Office has hosted the PPIRes project for 16 years

PPIRes supports a panel of 50 volunteers from Norfolk and Suffolk. Our volunteers work with researchers to deliver robust and ethical Patient and Public Involvement (PPI) in primary and secondary care. They contribute to developing the research idea and when a research study is funded.

We also invite patient and carer groups and local charities to join PPIRes volunteers to collaborate with research teams.

PPI in research


how PPI can impact on the life cycle of a research project.

This image was co-designed with PPIRes members. It illustrates how PPI can impact on the life cycle of a research project.

Volunteers

If you would like to find out more about volunteering with PPIRes please email: nwccg.ppires@nhs.net

or call Jacqueline Romero (PPIRes Project Officer) on 01603 257 009 (landline forwarded to mobile) or 07799 341 259 (Mobile)

Our new Policy on payments to volunteers for PPIRes supported activity is effective from 17th December 2018.

The full policy can be requested via email or phone, a summary is available here.

Researchers

If you are a researcher and interested in working with PPIRes volunteers please complete this initial request form and return to nwccg.ppires@nhs.net

Or ring the office to talk through your PPI plan on 07799 341 259.

Ini Res Req for PPIRes Invol 2017.doc

PPI resources for researchers

These resources are produced by INVOLVE, a national advisory group which supports active public involvement in NHS, public health and social care research. It is funded by and is part of the NIHR.

link to starting out, Essential information for members of the public getting started in involvement in research.
link to, guidance on co-producing a research project
link to, guidance for researchers: feedback
link to, national standards for public involvement

Twitter

You can follow us on Twitter @NHS_NSResearch.

PPIRes dates for the calendar

PPIRes Panel Meetings

November 2021 meeting date to be confirmed