Public, patient and carer voice in research
Researchers want to learn from the knowledge patients and carers have gained from living with a condition, or through caring for someone with a condition. Their lived experiences of being on the receiving end of health and social care can contribute to how future research is undertaken. This can, in the longer-term, shape and improve how care is provided.
Interested members of the public can also bring a valuable, common sense perspective.
INVOLVE is a national organisation which supports active public involvement in NHS, public health and social care research. Visit their website for more information for researchers, patients and carers about involvement in research.
To find out about taking part in research as a participant you can read about Your Role in NHS Research and go to the UK Clinical Trials Gateway to find out about research taking place in your area. Alternatively you can ask your healthcare professionals about research projects
Public and Patient Involvement in Research (PPIRes)
The Research Office has hosted the PPIRes project for 14 years (see the PPIRes poster below):
PPIRes poster 2017.pdfPPIRes supports a panel of 60 volunteers from Norfolk and Suffolk. Our volunteers work with researchers to deliver robust and ethical Patient and Public Involvement (PPI) in primary and secondary care. They contribute to developing the research idea and when a research study is funded.
We also invite patient and carer groups and local charities to join PPIRes volunteers to collaborate with research teams.
PPI in research
This image was co-designed with PPIRes members. It illustrates how PPI can impact on the life cycle of a research project.
Volunteers
If you would like to find out more about volunteering with PPIRes please email: SNCCG.PPIResOffice@nhs.net
or call Jacqueline Romero (PPIRes Project Manager) on 01603 257 009.
Our new Policy on payments to volunteers for PPIRes supported activity is effective from 17th December 2018.
The full policy can be found here, with a summary available here.
Researchers
If you are a researcher and interested in working with PPIRes volunteers please complete this initial request form and return to SNCCG.PPIResOffice@nhs.net.
Or ring the office to talk through your PPI plan on 01603 257 009.
Ini Res Req for PPIRes Invol 2017.docPPIRes – who we are, what we do and what we've done
This document details how PPIRes volunteers support researchers and how we support our volunteers.
PPIRes - Who are we & what we do (online).pdfPPIRes Newsletter
PPIRes Newsletter Summer 2018.pdfPPI resources for researchers
These resources are produced by INVOLVE, a national advisory group which supports active public involvement in NHS, public health and social care research. It is funded by and is part of the NIHR.
PPIRes dates for the calendar
PPIRes Panel Meetings
Thursday, 6 December 2018
How PPI has influenced a five year research project
Professor David Wright will talk and discuss his experience of patient and public involvement in research in his time at UEA and in his most recent research project the Care Homes Independent Pharmacist Prescribing Study (CHIPPS). This is a five-year National Institute of Health Research (NIHR) research programme into medicines management in care homes which is being carried out in four sites: Norfolk, Yorkshire, Grampian and Northern Ireland.