Public, patient and carer voice in research

Researchers want to learn from the knowledge patients and carers have gained from living with a condition, or through caring for someone with a condition. Their lived experiences of being on the receiving end of health and social care can contribute to how future research is undertaken. This can, in the longer-term, shape and improve how care is provided.

Interested members of the public can also bring a valuable, common sense perspective.

INVOLVE is a national organisation which supports active public involvement in NHS, public health and social care research. Visit their website for more information for researchers, patients and carers about involvement in research.

To find out about taking part in research as a participant you can read about Your Role in NHS Research and go to Be Part of Research to find out about research taking place in your area. Alternatively you can ask your healthcare professionals about research projects

Public and Patient Involvement in Research (PPIRes)

The Research Office has hosted the PPIRes project for 14 years (see the PPIRes poster below):

PPIRes poster 2017.pdf

PPIRes supports a panel of 60 volunteers from Norfolk and Suffolk. Our volunteers work with researchers to deliver robust and ethical Patient and Public Involvement (PPI) in primary and secondary care. They contribute to developing the research idea and when a research study is funded.

We also invite patient and carer groups and local charities to join PPIRes volunteers to collaborate with research teams.

PPI in research

how PPI can impact on the life cycle of a research project.

This image was co-designed with PPIRes members. It illustrates how PPI can impact on the life cycle of a research project.


If you would like to find out more about volunteering with PPIRes please email:

or call Jacqueline Romero (PPIRes Project Officer) on 01603 257 009 (Landline forwarded to mobile) or 07799 341 259 (Mobile)

Our new Policy on payments to volunteers for PPIRes supported activity is effective from 17th December 2018.

The full policy can be found here, with a summary available here.


If you are a researcher and interested in working with PPIRes volunteers please complete this initial request form and return to

Or ring the office to talk through your PPI plan on 01603 257 009.

Ini Res Req for PPIRes Invol 2017.doc

PPIRes – who we are, what we do and what we've done

This document details how PPIRes volunteers support researchers and how we support our volunteers.

PPIRes - Who are we & what we do (online).pdf

PPIRes Newsletter

PPIRes Newsletter Summer 2018.pdf

PPI resources for researchers

These resources are produced by INVOLVE, a national advisory group which supports active public involvement in NHS, public health and social care research. It is funded by and is part of the NIHR.

link to starting out, Essential information for members of the public getting started in involvement in research.
link to, guidance on co-producing a research project
link to, guidance for researchers: feedback
link to, national standards for public involvement


You can follow us on Twitter @NHS_NSResearch.

PPIRes dates for the calendar

PPIRes Panel Meetings

Thursday, 6 December 2018

How PPI has influenced a five year research project

Professor David Wright will talk and discuss his experience of patient and public involvement in research in his time at UEA and in his most recent research project the Care Homes Independent Pharmacist Prescribing Study (CHIPPS). This is a five-year National Institute of Health Research (NIHR) research programme into medicines management in care homes which is being carried out in four sites: Norfolk, Yorkshire, Grampian and Northern Ireland.